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Myotonic Dystrophy and Facioscapulohumeral Muscular Dystrophy Registry

Recruitingn/aAges any - anyAllUniversity of Rochester
NCT00082108 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Myotonic dystrophy (DM) and facioscapulohumeral muscular dystrophy (FSHD) are inherited disorders characterized by progressive muscle weakness and loss of muscle tissue. The purpose of this registry is to connect people with DM or FSHD with researchers studying these diseases. The registry will offer individuals with DM and FSHD an opportunity to participate in research that focuses of their diseases. The registry will also help scientists to accomplish research on DM and FSHD and to distribute their findings to patients and care providers.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosed with DM, FSHD, or related diseases or are an unaffected family member of someone diagnosed with one of these diseases
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What it tests

  • Not listed
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Where

1 site
University of Rochester Medical Center, Department of Neurology
Rochester, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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