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← Trials
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Rare Kidney Stone Consortium Patient Registry

Recruitingn/aAges 0 Years - 100 YearsAllMayo Clinic
NCT00588562 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The purpose of this study is to collect medical information from a large number of patients in many areas of the world with primary hyperoxaluria (PH), Dent disease, Cystinuria and APRT deficiency. This information will create a registry that will help us to compare similarities and differences in patients and their symptoms. The more patients we are able to enter into the registry, the more we will be able to understand the Primary Hyperoxalurias,Dent disease, cystinuria and APRT and learn better ways of caring for patients with these diseases.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Individuals must have a definitive diagnosis of Primary Hyperoxaluria, Dent Disease, Cystinuria or APRT Deficiency. * Individuals have a family history of a sibling with Primary Hyperoxaluria,Dent Disease, Cystinuria or APRT Deficiency. Exclusion Criteria: * Individuals who do not have Primary Hyperoxaluria, Dent Disease, Cystinuria or APRT Deficiency.
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What it tests

  • Not listed
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Where

4 sites
Dent Disease Registry -Mayo Clinic
Rochester, United States
Primary Hyperoxaluria Registry - Mayo Clinic
Rochester, United States
Cystinuria Registry - New York University
New York, United States
APRT Registry - Landspitali Universtiy Hospital
Reykjavik, Iceland
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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