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Educational, Social Support, and Nutritional Interventions and Their Cumulative Effect on Pregnancy Outcomes and Quality of Life in Teen and Adult Women With Phenylketonuria

RecruitingNAAges 11 Years - anyFemaleEmory University
NCT01659749 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The purpose of this project is to study the effectiveness of teaching teens and young women with Phenylketonuria (PKU) or Maple Syrup Urine Disease (MSUD) about their disease and nutrition related issues in a camp environment. It will also look at pregnancy outcome results in women with PKU who attended Metabolic Camp and compare their results to other women with PKU who have not attended the Metabolic Camp.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosed with PKU or other aminoacidopathy, female, age 11 or older, able to provide informed consent Exclusion Criteria: * Those not fitting the inclusion criteria Inclusion Criteria for healthy controls Individuals eligible to participate in this study must meet all of the following criteria: * Adult camp counselors or staff determined to be in good health. * Not diagnosed with PKU, MSUD or other hereditary metabolic disorder * Willing and able to provide written informed consent * Willing and able to comply with relevant camp guidelines and study procedures
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What it tests

  • Metabolic camp
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Where

1 site
Emory University Department of Human Genetics
Atlanta, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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