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Clinical and Neuropsychological Investigations in Batten Disease

Recruitingn/aAges any - anyAllUniversity of Rochester
NCT01873924 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This study aims to assess the natural history of Batten disease (Neuronal Ceroid Lipofuscinosis) by obtaining information about the motor, behavioral, and functional capabilities of individuals with Batten disease. This study will also refine and validate the Unified Batten Disease Rating Scale (UBDRS) as a clinical rating instrument for Batten disease.

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📋 Eligibility rules (as published)
Inclusion Criteria: * child or adult with any form of Batten disease * parent or legal guardian of a child or adult with any form of Batten disease Exclusion Criteria: \- parent or guardian unable or unwilling to provide permission for the affected individual
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What it tests

  • Not listed
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Where

1 site
University of Rochester
Rochester, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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