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← Trials
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The NF Registry Sponsored by the Children's Tumor Foundation

Recruitingn/aAges any - anyAllThe Children's Tumor Foundation
NCT01885767 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosed with NF1 * Diagnosed with NF2-related schwannomatosis * Diagnosed with Schwannomatosis Exclusion Criteria: * Failure to complete account registration and consent
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What it tests

  • Not listed
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Where

1 site
Children's Tumor Fundation
New York, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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