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Swiss National Registry of Adults With Congenital Heart Disease

Recruitingn/aAges 18 Years - anyAllUniversity Hospital, Basel, Switzerland
NCT02258724 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Due to successes in the last decades in pediatric heart surgery and cardiology, 90-95% of the children with congenital heart disease reach adult age.This results in an increasing number of adults or "grown-ups" with congenital heart disease (ACHD or GUCH patients) that require special health care organization and training programmes. Long term complications of these GUCH patients and optimum treatment strategies are still poorly known. The aim of this registry is to collect quantitative and qualitative data regarding GUCH patients treated in specialised centres in Switzerland.

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📋 Eligibility rules (as published)
Inclusion Criteria: Adult (above 18 years of age) with congenital heart disease, treated in one of the Swiss centre with specialized organisation for GUCH patients. Signed informed consent. Patients with trisomy 21: the parents or legal guardian will have to give the consent. Exclusion Criteria: None
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What it tests

  • Not listed
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Where

6 sites
Basel University Hospital
Basel, Switzerland
Bern University Hospital Inselspital
Bern, Switzerland
Hôpitaux Universitaires de Genève HUG
Geneva, Switzerland
Centre Hospitalier Universitaire Vaudois CHUV
Lausanne, Switzerland
Kantonsspital St.Gallen
Sankt Gallen, Switzerland
University Hospital Zurich
Zurich, Switzerland
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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