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International Pachyonychia Congenita Research Registry

Recruitingn/aAges any - anyAllPachyonychia Congenita Project
NCT02321423 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

International Pachyonychia Congenita Research Registry (IPCRR) is a patient registry for those suffering from Pachyonychia Congenita (PC). PC is an ultra-rare extremely painful skin disorder that causes painful blisters and callus on feet and sometimes hands, thickened nails, cysts and other features. The IPCRR consists of a questionnaire, patient photos, optional physician notes from telephone consultation to validate questionnaire and free genetic testing.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Clinical diagnosis of Pachyonychia Congenita or similar disorder Exclusion Criteria: * N/A
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What it tests

  • Not listed
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Where

1 site
Pachyonychia Congenita Project
Salt Lake City, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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