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← Trials
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Myotonic Dystrophy Family Registry

Recruitingn/aAges any - anyAllMyotonic Dystrophy Foundation
NCT02398786 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The Myotonic Dystrophy Family Registry (MDFR) is an online, patient-entered database that collects information on myotonic dystrophy (DM) to aid researchers in developing new, effective treatments and help identify participants for research studies and clinical trials.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosed with congenital, juvenile-onset or adult onset DM1 or DM2 (confirmed by clinical exam or genetic test) Exclusion Criteria: * Not diagnosed with DM, unaffected family members
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What it tests

  • Patient-entered data
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Where

1 site
Myotonic Dystrophy Foundation
Oakland, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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