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International HIT-MED Registry (I-HIT-MED)

Recruitingn/aAges any - anyAllUniversitätsklinikum Hamburg-Eppendorf
NCT02417324 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The I-HIT-MED registry registers clinical of children and adults with medulloblastoma, ependymoma, pineal tumours, or choroid plexus tumours in Germany and other countries that fulfil national ethic requirements for participation in this registry. These tumours are rare diseases, and many patients are treated outside of clinical trials. The I-HIT-MED registry allows collection of data und biological material from those patients, and provides a basis for standard treatment recommendations and counselling. It aims to improve the international cooperation and the medical knowledge in these rare diseases. Within the I-HIT-MED registry, it is a goal to maintain and improve networks for quality assurance in national groups where they are already established, and to support the implementation in national groups, where there is no quality assurance network yet.

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📋 Eligibility rules (as published)
Inclusion Criteria: * all patients with above mentioned diagnosis of all ages (except for ependymoma WHO I°, pineal parenchymal tumour of intermediate differentiation and papillary tumour of the pineal region, who will be registered only if primary diagnosis was before the 18th birthday) * any localisation of the primary tumour * all clinical stages * First diagnosis after 01.01.2012 * No inclusion into a prospective clinical trial for the same diagnosis, due to non-eligibility, national lack of trial approval, or individual refusal of participation. * Written informed consent for data transfer and tumour sample submission according to the laws of each participating country is necessary. * National and/ or local ethical committee approval according to the laws of each participating country is necessary. Exclusion Criteria: * Registration in another clinical trial for the same diagnosis (relapse is defined as a second diagnosis). * Lack of valid ethical committee approval.
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What it tests

  • Not listed
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Where

57 sites
University Hospital Aachen
Aachen, Germany
Klinikum Augsburg
Augsburg, Germany
Helios Klinikum Berlin-Buch
Berlin, Germany
Charite Campus, University of Berlin
Berlin, Germany
Evangelisches Krankenhaus Bielefeld
Bielefeld, Germany
Klinikum Braunschweig
Braunschweig, Germany
Klinikum Bremen-Mitte
Bremen, Germany
Klinikum Chemnitz
Chemnitz, Germany

…and 49 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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