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Primary Tumor Research and Outcomes Network

Recruitingn/aAges any - anyAllAO Innovation Translation Center
NCT02790983 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This project aims to establish a network of spine oncology centers dedicated to prospective multicenter research of patients diagnosed with a primary tumor of the spine and will include a comprehensive prospective clinical database which will serve as a shared research platform. Demographic, clinical, diagnostic, and therapeutic variables will be used to answer questions about survival and local recurrence, as well as questions about adverse events (AEs), morbidity data, and health-related quality of life (HRQOL) outcomes.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion criteria * Patient with a current primary spine tumor or history of a primary spine tumor, including tumors within or surrounding the spinal column and/or spinal cord. This includes extradural tumors, intramedullary tumors (i.e. astrocytomas, ependymoma, etc.) and extramedullary tumors (i.e. meningiomas, neurofibromas, schwannomas, etc.). * Informed consent obtained, i.e.: * Ability to understand the content of the patient information/ICF * Willingness and ability to participate in the registry according to the Registry Plan (RP) * Signed and dated EC/IRB approved written informed consent OR * Written consent provided according to the IRB/EC defined and approved procedures for patients who are not able to provide independent written informed consent Exclusion Criteria: \- Patient diagnosed with a metastatic tumor of the spine.
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What it tests

  • Not listed
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Where

19 sites
University of California
Los Angeles, United States
UCSF Medical Center
San Francisco, United States
Johns Hopkins University School of Medicine
Baltimore, United States
Massachusetts General Hospital
Boston, United States
Mayo Clinic
Rochester, United States
Memorial Sloan-Kettering Cancer Center
New York, United States
Memorial Sloan Kettering Cancer Center
New York, United States
Rhode Island Hospital
Providence, United States

…and 11 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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