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The European Paediatric Network for Haemophilia Management ( PedNet Registry)

Recruitingn/aAges any - anyAllPedNet Haemophilia Research Foundation
NCT02979119 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Rationale: Haemophilia is a rare disease; to improve knowledge international collaboration is needed. Well-defined clinical data will be collected from complete cohorts in order to prevent selection bias. Objective: To collect data on bleeding during neonatal period, endogenous (genetic) and exogenous (treatment-related) determinants of inhibitor development and long term outcome.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosed with Haemophilia A or B * Factor VIII/ IX activity of \<1 to 25% * Complete records of Factor treatment and bleeds * Treated in one of the participating centres Exclusion Criteria: * Patients referred because of an inhibitor\* * Informed consent not obtained
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What it tests

  • Not listed
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Where

39 sites
Universitäts-Klinik für Kinder- und Jugendheilkunde
Graz, Austria
Medical University of Vienna - Department of Paediatrics
Vienna, Austria
Service of Pediatric Haematology University Hospital Leuven
Leuven, Belgium
Division of Hematology/Oncology Hôpital St Justine
Montreal, Canada
Division of Haematology/Oncology Hospital for Sick Children
Toronto, Canada
Haemophilia Comprehensive Care Centre, Centre for Thrombosis and Haemostasis Children's University Hospital Brno
Brno, Czechia
Department of Paediatric Haematology/oncology - University Hospital Motol
Prague, Czechia
Department of Pediatrics Århus Kommunehospital Skejby Sygehus
Aarhus, Denmark

…and 31 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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