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Fibrous Dysplasia, McCune-Albright Syndrome Patient Registry

Recruitingn/aAges any - anyAllTovah Burstein
NCT03231644 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria any one or more of the following: * clinical diagnosis of fibrous dysplasia * clinical diagnosis of McCune-Albright syndrome * clinical diagnosis of Mazabraud's syndrome
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What it tests

  • Not listed
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Where

1 site
Tovah Burstein
Bethesda, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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