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Natural History of Wilson Disease

Recruitingn/aAges any - anyAllYale University
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In plain words

What the trial is, and whether it could suit you

The purpose of the registry/repository is to provide a mechanism to store data and specimens to support the conduct of future research about Wilson disease (WD). The overall aim is to determine the optimal testing for diagnosis and parameters for monitoring treatment of WD that will aid product utilization and development.

Sign in to get the eligibility rules as simple questions to take to your doctor.

📋 Eligibility rules (as published)
Inclusion Criteria: * Known diagnosis of WD * Able and willing to provide informed consent for adults (Parental/guardian permission (informed consent) and if appropriate, child assent for participants \<18 (or per local Institutional Review Board (IRB) regulation) Exclusion Criteria: * Diagnosis of WD has been excluded * Unwilling to provide informed consent or assent
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What it tests

  • Not listed
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Where

6 sites
Yale University
New Haven, United States
Advent Health
Orlando, United States
Baylor College of Medicine
Houston, United States
Seattle Children's Hospital
Seattle, United States
Universitätsklinikum Heidelberg
Heidelberg, Germany
Royal Surrey Country Hospital
Guildford, United Kingdom
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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