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โ† Trials
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Patient Reported Outcomes Burdens and Experiences - Phase 3

Recruitingn/aAges any - anyAllMcMaster University
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In plain words

What the trial is, and whether it could suit you

The PROBE Phase-3 study will collect data on patient reported outcomes, burdens, and experiences in patients living with hemophilia. The investigators will perform comparisons among countries, within country over time, within country against national normative data.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * PWH will be recruited through national hemophilia patient organizations utilizing their existing membership rosters, social media outlets and meetings / events. The investigators are not proposing a pre-determined method of PWH recruitment. They will utilize the information acquired in the workshop and take-home project to inform best practice in recruitment methodology for the study. The investigators may consider requesting different countries test different PWH recruitment strategies to test reproducibility. In the future, the questionnaire might also be administered to patients with other chronic conditions. Exclusion Criteria: * Disease severity and Age bands or age limits (e.g. โ‰ฅ Age 18) may be utilized to narrow the study population.
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What it tests

  • Quality of life measure (survey)
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Where

1 site
McMaster University
Hamilton, Canada
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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