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Supportive Care Needs of Caregivers of People With Erdheim-Chester Disease and Other Histiocytic Diseases

Recruitingn/aAges 18 Years - anyAllMemorial Sloan Kettering Cancer Center
NCT03990428 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This study is being done to answer the following question: What are the supportive care needs of informal caregivers of people with Erdheim-Chester disease and other histiocytic diseases?

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📋 Eligibility rules (as published)
Inclusion Criteria: * Self-identified informal caregiver (family member or friend who provides unpaid support) for a patient with Erdheim-Chester Disease (or LCH, RDD, or JXG for the exploratory aim). * Proficiency to complete study assessments in English, evaluated at the time of consent. * Age 18 or over. Exclusion Criteria: * Participant unwilling to sign consent. * Participant unable to complete web-based assessments.
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What it tests

  • online surveys
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Where

1 site
Memorial Sloan Kettering Cancer Center
New York, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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