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← Trials
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ADPKD Patient Registry

Recruitingn/aAges any - anyAllPKD Foundation
NCT04039061 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosis or suspected diagnosis with autosomal dominant polycystic kidney disease (ADPKD) Exclusion Criteria: * caretakers, family members or friends of individuals with ADPKD
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What it tests

  • Not listed
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Where

1 site
PKD Foundation
Kansas City, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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