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Registry of Ollier Disease and Maffucci Syndrome

Recruitingn/aAges any - anyAllLuca Sangiorgi
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In plain words

What the trial is, and whether it could suit you

REM is a retrospective and prospective registry, finalized to care and research. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc.. This approach has been individuated in order to corroborate and integrate data from different resources and aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * All patients affected by Ollier Disease and Maffucci Syndrome Exclusion Criteria: * Any condition unrelated to Ollier Disease and/or Maffucci Syndrome
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What it tests

  • Not listed
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Where

1 site
Irccs Istituto Ortopedico Rizzoli
Bologna, Italy
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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