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← Trials
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Alpha-1 Research Registry

Recruitingn/aAges any - anyAllAlpha-1 Foundation
NCT04157049 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Patients diagnosed with Alpha-1 Antitrypsin Deficiency (PiZZ, PiZNull, PiSZ etc.) * Alpha-1 carriers (PiMZ, PiMS etc.) Exclusion Criteria: * Failure to provide informed consent * Normal healthy individuals (MM)
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What it tests

  • Not listed
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Where

1 site
Alpha-1 Foundation
Coral Gables, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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