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Aftercare of Childhood Cancer Survivors in Switzerland

Recruitingn/aAges 16 Years - anyAllKantonsspital Aarau
NCT04284189 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The Aftercare of Childhood Cancer Survivors in Switzerland (ACCS) study is a multicenter cohort study designed to investigate transition of follow-up care from pediatric oncology to adult care in a prospective and longitudinal way. The investigators collect data on preferences and expectations for follow-up care and transition to adult care by questionnaires in adolescent and young adult survivors of childhood cancer.

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📋 Eligibility rules (as published)
Inclusion Criteria: * 5-year survivor of childhood cancer * Diagnosis according to ICCC3 I-XII; Langerhans cell histiocytosis (LCH), Hemophagocytic lymphohistiocytosis (HLH) * Age at diagnosis \<18 years * Age at study ≥16 years * At study start in follow-up care at one of the three pediatric oncology centers (group before transition) or transitioned not before 2014 (group after transition). * Written informed consent Exclusion Criteria: * Treatment only by means of surgery and without increased risk of late effects (e.g. teratoma) * \<5 years after therapy of a relapse or palliative situation * Severe cognitive impairment, which makes it impossible to complete the questionnaire independently * Insufficient knowledge of the German language * Informed consent form not signed
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What it tests

  • Transition model
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Where

3 sites
Division of Oncology - Hematology, Department of Pediatrics, Kantonsspital Aarau
Aarau, Switzerland
Division of Oncology/ Hematology, University Children's Hospital Basel
Basel, Switzerland
Division of Oncology/ Hematology, Department of Pediatrics, Kantonsspital Lucerne
Lucerne, Switzerland
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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