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French National Registry of Bone Marrow Failures

Recruitingn/aAges any - anyAllAssistance Publique - Hôpitaux de Paris
NCT04781790 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This is a unique clinical and biological database that collects standardized clinical information during the management of all patients with bone marrow failure syndromes (BMF) in France (multicenter registry), from diagnosis and throughout follow-up during the natural history of the disease, treated or not. In parallel, biological samples (blood and/or bone marrow and/or skin) are collected during clinical care and are biobanked in Saint-Louis Hospital (Hematology laboratory) in order to be used in translational research related to bone marrow failure diseases. This registry has two main objectives: * Public health care evaluation and improvement: to assess the medical and social needs inherent to the management of these rare diseases; to precisely assess the level of diagnosis and management of bone marrow failure syndromes in France; to evaluate the impact and guidance of the French

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📋 Eligibility rules (as published)
Inclusion Criteria: * All age * All diagnostic of BMF * Having given his non-opposition to registry after understand overall aims * Having signed a written informed consent (2 parents for patients aged less than 18) for collection of biological samples * With health insurance coverage Exclusion Criteria: With myelodysplastic syndrome occurring in a patient over the age of 50 in absence of genetical predispositions, familial forms and history of medullary hypoplasia
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What it tests

  • Bone Marrow Failure
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Where

1 site
Hématologie Greffe
Paris, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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