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ETMR One: An International Registry and Research Platform for Children With Embryonal Tumor With Multilayer Rosettes

Recruitingn/aAges any - anyAllHackensack Meridian Health
NCT04794686 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This research is being done to find out more information about a brain tumor called Embryonal Tumor with Multilayer Rosettes (ETMR) by collecting medical information from children who have this disease. The purpose of this research study is to create and maintain a research database for patients with ETMR. The database will include information about occurrence rates, patient information, tumor tissue information, and response to treatment. This will help advance our understanding of this rare disease. In addition, this study will include obtaining survival data and evaluating therapeutic response to expert consensus therapy, and procuring patient tumor tissue.

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. Patients of any age 2. Patients must have either a histologically confirmed primary intracranial CNS Embryonal Tumor with Multilayer Rosettes (as agreed upon by central review or local pathologist OR 3. Patients must have tumor tissue that possesses C19MC amplification . Central Review is not required (but is strongly recommended) if the patient's tumor does not demonstrate C19MC amplification. 4. Patients may be enrolled at point following diagnosis
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What it tests

  • Not listed
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Where

1 site
Hackensack University Medical Center
Hackensack, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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