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← Trials
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The Rett Syndrome Global Registry

Recruitingn/aAges any - anyAllRett Syndrome Research Trust
NCT04900493 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The Rett Global Registry is a fully remote, global, caregiver-reported registry to collect information about caring for a loved one with Rett syndrome. In addition, caregivers have the ability to track and graph their loved one's symptoms and care strategies over time, store information for central access, and opt-in to complete medical record consolidation and summary. Qualified researchers and therapeutic developers may request access to de-identified aggregate information to further Rett research, or assist with clinical development planning to facilitate and expedite more effective clinical trials.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. Parent/caregiver must be willing and able to provide written informed consent electronically prior to entering data into the registry. 2. Rett individuals of any age, living or deceased, must have a diagnosis of Rett syndrome and/or have a mutation in MECP2. Exclusion Criteria: 1. Individuals who have a genetic mutation that is inconsistent with Rett syndrome or who have a different disorder. 2. Individuals with MECP2 Duplication Syndrome
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What it tests

  • Not listed
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Where

1 site
Rett Syndrome Research Trust
Trumbull, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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