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โ† Trials
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Parkinson's Foundation PD GENEration Genetic Registry

Recruitingn/aAges 18 Years - anyAllParkinson's Foundation
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In plain words

What the trial is, and whether it could suit you

Development of a central repository for PD-related genomic data for future research.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * Study Population 1: PWP (open for recruitment) 1. Meet Movement Disorder Society (MDS) Clinical Diagnostic Criteria for Parkinson's Disease: probable diagnosis. 2. Willingness to undergo genetic testing, and choose to be informed of genetic testing results for GBA, LRRK2 and 5 additional PD related genes (SNCA, VPS35, PRKN, PINK-1, PARK7). 3. Capacity to give full informed consent in writing or electronically, and have read and signed the informed consent forms (ICFs) based on site clinician's determination. 4. Able to perform study activities (including completion of either online, in-person or paper surveys). Study Population 2: People at risk of developing PD (not open for recruitment) 1\. Family members of Study Population 1 may be invited to participate in the study if confirmatory genetic testing is deemed necessary by the genetic testing laboratory. Exclusion Criteria: 1. Diagnosis of an atypical parkinsonian disorder (i.e., multiple system atrophy, progressive supranuclear palsy, dementia with Lewy bodies, corticobasal syndrome), including that due to medications, metabolic disorders, encephalitis, cerebrovascular disease, or normal pressure hydrocephalus. 2. Individuals who have received a blood transfusion within the past 3 months. 3. Individuals who have active hematologic malignancies such as lymphoma or leukemia. 4. Individuals who have had a bone marrow transplant within the past 5 years. 5. Under the age of 18
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What it tests

  • Lab Assay for seven genetic variants for Parkinson's Disease
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Where

70 sites
University of Alabama Birmingham
Birmingham, United States
MD First Research
Chandler, United States
Barrow Neurological Institute
Phoenix, United States
University of Arkansas
Fayetteville, United States
University of California San Diego (UCSD)
La Jolla, United States
University of Southern California
Los Angeles, United States
University of California Los Angeles
Los Angeles, United States
Stanford University
Redwood City, United States

โ€ฆand 62 more on ClinicalTrials.gov.

๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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