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Registre HEAR, Healthcare European Amyloidosis Registry

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NCT05101304 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This is a non-interventional, prospective, retrospective, non-comparative, multi-center study. In order not to interfere with patient management, the study is observational. Thus, no follow-up visit is imposed. The data collection will be limited to the data related to the management of the patients included throughout their follow-up. This study is intended for all patients with a confirmed or suspected diagnosis of cardiac amyloidosis. Three cohorts will be identified: the HEAR (Healthcare European Amyloidosis Registry)-Retrospective Cohort, the HEAR(Healthcare European Amyloidosis Registry)-Retrospective-Prospective Cohort and the HEAR (Healthcare European Amyloidosis Registry)-Prospective Cohort.

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📋 Eligibility rules (as published)
INCLUSION CRITERIA 1. Patients must meet all of the following inclusion criteria to be included in the study: * Major patient * Protected adult patient (guardianship or curatorship) 2. Prospective Cohort: Patients referred or who have been referred to the participating centre for suspected amyloidosis. Patient who signed the patient information "Prospective Cohort" note 3. Retro-prospective Cohort: Patient already followed in the center with a confirmed diagnosis of amyloidosis Patient who signed the "retro-prospective cohort" patient information note 4. Retrospective cohort: Deceased patients followed in the center with a confirmed diagnosis of amyloidosis Study participants will not be compensated for their participation EXCLUSION CRITERIA The patient has expressed his/her refusal to participate Participation in another study, even an interventional one, is not a criterion for non-inclusion.
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What it tests

  • Not listed
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Where

1 site
Hôpital Henri Mondor
Créteil, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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