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Swiss Registry for Neuromuscular Disorders

Recruitingn/aAges 0 Years - anyAllUniversity of Bern
NCT05102916 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Children, adolescents and adults diagnosed with a NMD * Who are living or treated for a NMD in Switzerland, and * Who gave informed consent Exclusion Criteria: * None if diagnosis is confirmed, whenever possible, by genetic testing, or at least by biopsy and/or electroneuromyography, according to international standards for the diagnosis of the given NMD.
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What it tests

  • Not listed
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Where

19 sites
Cantonal Hospital Aarau
Aarau, Switzerland
Pediatric Institute of Southern Switzerland, Ospedale San Giovanni
Bellinzona, Switzerland
Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano
Lugano, Switzerland
University Hospital Lausanne CHUV, Children's Hospital
Lausanne, Switzerland
University Hospital Lausanne CHUV
Lausanne, Switzerland
University Children's Hospital Basel
Basel, Switzerland
University Hospital Basel
Basel, Switzerland
Inselspital Bern, Children's Hospital
Bern, Switzerland

…and 11 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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