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Dietary Intake and Dietary Behaviors in Adults With Sickle Cell Disease

Recruitingn/aAges 18 Years - 120 YearsAllNational Institutes of Health Clinical Center (CC)
NCT05170412 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Background: Sickle Cell Disease (SCD) causes blood cells form a crescent shape. It is caused by a genetic mutation in the hemoglobin gene. People with SCD are at increased risk for illnesses like stroke, chronic pain, and heart problems, as well as decreased overall health and well-being. Researchers want to learn more about how nutrition and diet can help relieve or reduce the symptoms of SCD. Objective: To understand how diet, dietary patterns and behaviors, nutrition, and other related factors in adults with SCD affect their overall health. Eligibility: Adults aged 18 and older with SCD. Design: Participants will be screened with a review of their medical records. They will take a pregnancy test if needed. Participants will have a physical exam and medical history. Their height, weight, and waist and hip circumference will be measured. They can complete this exam (1) via teleh

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📋 Eligibility rules (as published)
* INCLUSION CRITERIA: In order to be eligible to participate in this study, the participant must: 1. State their willingness to complete all study procedures for the duration of the study 2. 18 years of age or older at the time of screening 3. Have a documented clinical diagnosis (upon review of medical records) of SCD or presence of a SCD hemoglobinopathy genotype HbSS, HgSC, HbSB 0 or HBSB+ EXCLUSION CRITERIA: The following criteria will exclude any individual from participating in the study: 1. Less than 18 years of age 2. Unable to speak, read, write, and/or understand English 3. Presence of a condition or illness that will hamper the individual from giving informed consent (e.g. cognitive impairment) 4. SCD trait genotype 5. Currently undergoing inpatient treatment in any hospital for SCD at the time of screening 6. Pregnancy at the time of screening
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What it tests

  • Not listed
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Where

1 site
National Institutes of Health Clinical Center
Bethesda, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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