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SIOPEN BIOPORTAL, An International Registry Linked to a Virtual Biobank for Patients With Peripheral Neuroblastic Tumours

RecruitingNAAges any - anyAllInstitut Curie
NCT05192980 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The SIOPEN BIOPORTAL is a prospective non-therapeutic multi-centre international study aimed at developing an international Registry linked to a Virtual Biobank for all the patients with peripheral neuroblastic tumor within countries of the SIOPEN network. The overall aim of this study is to provide a GDPR-compliant framework to collect basic clinical annotations, biological and genetic features and information about the location on biospecimens for all the patients with a peripheral neuroblastic tumor including neuroblastoma, ganglioneuroblastoma and ganglioneuroma in the SIOPEN network. This study will support data and sample management and intensify cross-borders data and sample sharing fostering translational and clinical research. The post-hoc hypothesis formulated based on the data generated in this study will be used as statistical basis for future precision medicine programs bas

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📋 Eligibility rules (as published)
Inclusion Criteria: I-1. Patients with PNT: ganglioneuroma or ganglioneuroblastoma or neuroblastoma, I-2. At the time of initial diagnosis of neuroblastic tumour, or at relapse/progression if not yet registered I-3. Written patient informed consent, or parents or legal representative written informed consent and assent of the child, adolescent or young adult Non-Inclusion Criteria: R-1. (Adult) Patients with olfactory neuroblastoma R-2. Central nervous system (CNS) neuroblastoma (as per the WHO classification)
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What it tests

  • No Intervention NA
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Where

38 sites
Fakultni nemocnice v Motole
Prague, Czechia
CHU Amiens
Amiens, France
Chu Angers
Angers, France
Hôpital Jean Minjoz
Besançon, France
Hôpital des enfants
Bordeaux, France
Chru Brest
Brest, France
CHU CAEN - Fédération de cancérologie - niveau 21
Caen, France
CHU D'Estaing de CLERMONT FERRAND
Clermont-Ferrand, France

…and 30 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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