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International Wilson's Disease Patient Registry (iWilson Registry)

Recruitingn/aAges 12 Years - anyAllOrphalan
NCT05239858 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. Patient is able to provide, and has provided, written informed consent/assent 2. Written documentation has been obtained in accordance with the relevant country and local privacy requirements, where applicable, including: 1. For US sites: Authorization for Use and Release of Health Research Study Information 2. For EU sites: Data Protection Consent 3. All patients diagnosed with WD including pre-symptomatic individuals and individuals with co-morbidities/diagnoses 4. Any treatments including prescribed and homeopathic/traditional therapies or naive patients on no therapy Exclusion Criteria: 1\. Refusal of informed consent by either patient or their legally acceptable guardian
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What it tests

  • Not listed
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Where

16 sites
University Hospital Leuven
Leuven, Belgium
Hospices Civils de Lyon
Bron, France
HF Adolphe de Rothschild
Paris, France
Charite-Univeritatsmedizin Berlin Hospital
Berlin, Germany
Universitatsklinikum Dusseldorf
Düsseldorf, Germany
Hannover Medical School (MHH)
Hanover, Germany
Universitätsklinikum Leipzig
Leipzig, Germany
Institute of Psychiatry and Neurology
Warsaw, Poland

…and 8 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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