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Personalized Estimates of Response and Severity Outcomes in Newly-diagnosed JIA

RecruitingNAAges 1 Year - 18 YearsAllUniversity of British Columbia
NCT05310799 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The PERSON-JIA Trial is a cluster-randomized trial testing the use of Shared Decision Making (SDM) with families for treatment of children with arthritis. The intervention is a discussion between physicians and families at the time of diagnosis that uses computer-generated personalized outcome reports generated by previously developed prediction algorithms. By using information provided by thousands of families, the investigators have developed a way of providing answers to common questions asked by patients and their families at diagnosis. We will test whether a structured discussion and shared decision between families and doctors (guided by the patient's personal report) will improve the tailoring of treatment to the child and control of their disease. The personal report is called the PERSON-JIA report and presents the child's expected disease severity, the likelihood the child wil

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📋 Eligibility rules (as published)
Physicians (Inclusion): 1. Licensed to practice pediatric rheumatology in Canada; 2. Providing care for children with JIA at least once a month; 3. Consent to be randomized and to implement the SDM intervention for the duration of the trial, if randomized to the intervention arm; 4. Commit to propose enrollment in the Registry to all their newly diagnosed patients with JIA during the trial. Physicians (Exclusion): 1. Fellows-in-training; 2. Physicians planning to retire within 2 years. Patient (Inclusion): 1. Consent to include their information in the CAPRI JIA Registry; 2. Consent to the PERSON-JIA trial and answering additional questionnaires to assess decision making; 3. Allow recording of their medical encounter (if selected at random); 4. JIA fulfilling International League of Associations for Rheumatology (ILAR) criteria; 5. Newly diagnosed (within the last month); 6. Diagnosed by a pediatric rheumatologist participating in the PERSON-JIA study; 7. Not yet receiving treatment, or received only Non-Steroidal Anti-Inflammatory Drugs (NSAIDS) or joint injections; Patient (Exclusion): 1. Systemic arthritis category of JIA (it requires a different treatment approach); 2. Family is unable to complete study forms in English or French; 3. Patients who have already started systemic corticosteroid or any Disease Modifying Anti-Rheumatic Drug (DMARD).
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What it tests

  • Shared Decision Making (SDM)
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Where

1 site
BC Children's Hospital
Vancouver, Canada
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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