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Compassionate Communication and Advance Care Planning to Improve End of Life Care in Treatment of Hematological Disease (ACT)

RecruitingNAAges 18 Years - anyAllChristoffer Johansen
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In plain words

What the trial is, and whether it could suit you

Patients diagnosed with hematologic cancer are at substantial risk of dying, as 5-year survival among patients with acute myeloid leukemia is 20 % and only every second patient treated for incurable myeloma lives 5 years after date of diagnosis. Nevertheless, many overestimate their prognosis, and value of therapy. Patients with hematological cancers frequently have poor end of life outcomes, such as high treatment activity close to death, where clinical effects are doubtful, and low utilization of palliative care. Prognostic awareness and end of life (EOL) issues have urgency in the communication between patients, their caregiving relatives, and clinicians, in order to avoid futile treatments and suffering at EOL. Inspired by advanced care planning, the investigators developed the concept "Advance Consultations Concerning participants Life and Treatment" (ACT) in collaboration with a gr

Sign in to get the eligibility rules as simple questions to take to your doctor.

📋 Eligibility rules (as published)
Inclusion Criteria: Patients must: * Be at least 18 years of age * Have a diagnosis of one of the following: * High-risk myelodysplastic syndrome (MDS) or MDS with overlap of myeloproliferative neoplasms (high-risk MDS/MPN), * Acute myeloid leukemia(AML): Age≥80 or in palliative treatment or relapse * Lymphoma: Age≥80 or relapse or refractory or palliative treatment * Multiple myeloma(MM): Age≥80 or relapsed or refractory Have limited treatment options. Provide informed consent. Have sufficient Danish skills to complete intervention sessions and data collection An informal caregiver is identified by the patient as the primary provider of informal physical, practical or emotional support and must: * Be at least 18 years of age * Be able to accompany patients to intervention appointments * Provide informed consent * Have sufficient Danish skills to complete intervention sessions and data collection Physicians: * specialized in hematology * treating patients with High risk myelodysplastic syndrome, acute myeloid leukemia, lymphoma, or multiple myeloma * work at the same department for the entire time of intervention. Nurses: * treating patients with High-risk myelodysplastic syndrome, acute myeloid leukemia, lymphoma, or multiple myeloma * work at the same department for the entire time of intervention. Exclusion Criteria: Patient and caregiver are excluded if one of them is: \- Suffering from a severe psychiatric disorder Physicians and nurses: \- If they do not meet the inclusion criterion.
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What it tests

  • Advance consultation concerning your life and treatment (ACT )
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Where

7 sites
Aalborg Universitetshospital
Aalborg, Denmark
Aarhus Universitetshospital
Aarhus, Denmark
Sydvestjysk sygehus - Esbjerg
Esbjerg, Denmark
Regionshospitalet Gødstrup
Herning, Denmark
Odense Universitetshospital
Odense, Denmark
Sjællands universitetshospital Roskilde
Roskilde, Denmark
Lillebælt syge - Vejle Sygehus
Vejle, Denmark
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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