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The KidneyCARE (Community Access to Research Equity) Study

Recruitingn/aAges 18 Years - 120 YearsAllTufts Medical Center
NCT05497518 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

For chronic kidney disease (CKD), there is a lack of unique and powerful platform for patient engagement, research studies and public health advocacy work. The National kidney Foundation (NKF) launched the first nationwide registry for people at all stages and types of CKD, including people on dialysis and kidney transplant recipients, called the KidneyCARE Study (kidneycarestudy.org). The KidneyCARE Study is a non-interventional research study which means participants will not have to take medications or do any additional tests to participate. They are simply asked to share some personal and health information, and their experiences with their disease through a secure portal. The Study also collaborates with health systems to obtain additional electronic health records (EHR) data. This unique combination of data collected will address the gap of individualized educational resources and

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📋 Eligibility rules (as published)
Inclusion Criteria: * Patients with any stage of CKD, including kidney transplant recipients and patients on dialysis. * Age 18 years and above. * Willing to participate in the Study and complete the informed consent form and assent form (where applicable). * Able to participate in this Study, which initially will be in English and then eventually expand to other languages. * Patients affiliated with Geisinger Health System must have given their consent to Geisinger Health System IRB to be contacted for research projects. Exclusion Criteria: * Patient not diagnosed with CKD * Age below 18 years * Not willing to participate in the Study as well as unwilling to complete the informed consent form
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What it tests

  • Observational study - registry
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Where

1 site
Geisinger Clinic
Danville, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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