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Engagement in Physical Activities and Sports in Adolescents With Diaphragmatic Hernia

Recruitingn/aAges 12 Years - 18 YearsAllUniversity Hospital, Lille
NCT05666986 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The objective is to understand how a population of adolescents - who have undergone diaphragm surgery within their first month of life (i.e. subjects who have been carriers of a rare impacting disease such as congenital diaphragmatic hernia (CDH)) - engages in physical and sports activities and what can be the hindering factors as well as the factors facilitating these practices. Based on self-questionnaires and semi-structured interviews, this research is a qualitative research in the field of human and social sciences. The qualitative survey will make it possible to report on the experience of the disease of children and parents; in parallel, a complete medical evaluation of the subjects (clinical and para-clinical) will be carried out. The analysis of the verbatim of the self-questionnaires and interviews with regard to the real physical capacities of the subjects, will be discusse

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📋 Eligibility rules (as published)
Inclusion Criteria: * Child/adolescent having undergone surgery for CDH in the first month of life, aged 12 to 18 years; absence of polypathology (i.e. diaphragmatic hernia not associated with another pathology); follow-up at the CDH reference centre, Lille site * Written consent from both parents allowing the collection of data from the child/adolescent * Written consent from the parent(s) agreeing to participate in the study by answering the questionnaires and the individual interview, for themselves and for their child * Possibility of accessing equipment to conduct a video-conference interview if necessary. Exclusion Criteria: * Parents or child/adolescent not understanding French * Parents under guardianship or child under legal protection
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What it tests

  • Not listed
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Where

1 site
chu de Lille
Lille, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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