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TSC Biosample Repository and Natural History Database

Recruitingn/aAges any - anyAllNational Tuberous Sclerosis Association
NCT05676099 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosis of tuberous sclerosis complex or lymphangioleiomyomatosis (sporadic LAM). Exclusion Criteria: \-
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What it tests

  • Phlebotomy
  • Buccal (cheek) swab
  • Genetic Testing
  • Tissue donation after routine clinical procedure
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Where

26 sites
University of Alabama Birmingham
Birmingham, United States
Loma Linda University Children's Hospital
Loma Linda, United States
University of California Los Angeles
Los Angeles, United States
Jack & Julia Center for TSC, Oakland Children's Hospital and Research Center
Oakland, United States
The Children's Hospital
Denver, United States
Nicklaus Children's Hospital
Miami, United States
Chicago Comer Children's Hospital Neurogenetic Clinic, University of Chicago
Chicago, United States
University of Iowa Hospitals and Clinics
Iowa City, United States

…and 18 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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