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International Rare Brain Tumor Registry

Recruitingn/aAges any - 45 YearsAllChildren's National Research Institute
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In plain words

What the trial is, and whether it could suit you

The objective of the International Rare Brain Tumor Registry (IRBTR) is to better understand rare brain tumors through the collection of biospecimens and matched clinical data of children, adolescents, and young adult patients diagnosed with rare brain tumors.

Sign in to get the eligibility rules as simple questions to take to your doctor.

📋 Eligibility rules (as published)
Inclusion Criteria: * Patients with a known or suspected CNS Sarcoma. * Patients with a known or suspected BCOR-altered brain tumor * Patients with a known or suspected Astroblastoma/NM-1 altered brain tumor * Patients with known or suspected histologically ambiguous/unclassifiable brain tumor * Patients with a known or suspected rare brain tumor. * Signed informed consent by patient/ parent or guardian (assent where applicable) to participate in the study. Exclusion Criteria: * The patient has an extra-CNS primary tumor. * The patient is older than 46 years of age at diagnosis. * The patient or family is not willing to participate or does not sign informed consent.
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What it tests

  • Not listed
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Where

13 sites
Children's Hospital Los Angeles
Los Angeles, United States
University of California San Francisco
San Francisco, United States
Children's National Hospital
Washington D.C., United States
Ann & Robert H. Lurie Children's Hospital of Chicago
Chicago, United States
Akron Children's Hospital
Akron, United States
Cincinnati Children's Hospital Medical Center
Cincinnati, United States
TUCCA - Santa Marcelina
São Paulo, Brazil
HOMI - Fundación Hospital de la Misericordia
Bogotá, Colombia

…and 5 more on ClinicalTrials.gov.

🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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