๐ฌIn plain words
What the trial is, and whether it could suit you
African Americans are less likely to receive quality end-of-life (EoL) care. Addressing disparities in EoL care will need efforts to support a better understanding of African American patients' EoL cultural values and preferences for EoL communication and the impact of historical and ongoing care delivery inequities in healthcare settings.
Our proposed "Caring for Older African Americans" training program is designed to empower clinicians to improve goal-concordant EoL care delivery by using community-developed storytelling videos to create empathy with experiences of racism in EoL care, guidelines for culturally concordant EoL care delivery, and an implicit bias recognition and management training to mitigate bias in goals of care communication.
Sign in to get the eligibility rules as simple questions to take to your doctor.
๐ Eligibility rules (as published)
Inclusion Criteria: Aim 1.1
Person with serious Illness:
* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age โฅ60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score โฅ4
* Able to complete baseline surveys.
Bereaved family member:
* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age โฅ60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score โฅ4
* Able to complete baseline surveys.
Exclusion Criteria
Person with serious illness:
-Cannot be receiving hospice care
Bereaved Family Member:
-Cannot be a paid "sitter"
Inclusion Criteria: Aim 1.2
Bereaved Family member:
* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino
* Age โฅ60 years
* English-speaking
* Loved one dies in the last 12 months and was diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro- degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score โฅ4
* Able to complete baseline surveys
Pastors:
* Self-identifying as African American
* White, Non-Hispanic or Latino
* Sged โฅ18 years old.
Inclusion Criteria: Aim 3
Clinician eligibility:
* Practice at a University of Alabama at Birmingham (UAB) or Montefiore/Einstein site that provides care to patients eligible for outcomes surveys
* At least 3 months of clinical practice at the study site prior to the intervention training to measure pre-intervention patient surveys
Exclusion criteria:
-Lack of at least 3 months of clinical practice at the study site prior to the intervention training.
Patient eligibility:
* Self-identified as African American (i.e., born, raised, and lived primarily in the US)
* Non-Hispanic or Latino, 3. age โฅ60 years
* English-speaking
* Has been diagnosed with a condition that fits into one of 3 illness paradigms including cancer, cardiac disease, pulmonary disease, neuro-degenerative disease, renal disease, stroke, sepsis, hepatic disease)
* Callahan Six-Item Screener score โฅ4
* Able to complete baseline surveys.
Exclusion criteria include:
-Currently receiving hospice care.
Family member eligibility:
* Age โฅ 18 years
* English-speaking
* Community-dwelling
* Unpaid care provider of a person with a serious illness.
Exclusion criteria: 1. Cannot be a paid "sitter".