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Turkey Thrombotic Thrombocytopenic Purpura Disease Registry: National Multicenter Study

Recruitingn/aAges 18 Years - anyAllTurkish Hematology Association
NCT05950750 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

21 hematology centers in Turkey will participate in this noninterventional observational study. The recruitment target is 960 cases. Patients will be followed-up at least 1 year or to the end of the study according to the physicians' discretion, or withdrawal of consent. Recruitment period will be 36 months. Data will be collected via electronic case report form. Since the study cohort does not include only newly diagnosed patients, all aTTP patients will be included to the study, previous treatments and diagnosis information data could also be collected from hospital records. Patients recruitment duration: 3 years (36 months) Patients follow-up duration: 1 year (12 months)

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📋 Eligibility rules (as published)
Inclusion Criteria: * Diagnosed as aTTP after 01.01.2015 * Patients with ADAMS13\<10% * Thrombocytopenia (\<100.000) * Coombs (-) * Microangiopathic hemolytic amenia * 18 years and older Exclusion Criteria: \- Patient who does not sign informed consent form
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What it tests

  • Not listed
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Where

1 site
Baskent Universtiy Faculty of Medicine
Ankara, Turkey (Türkiye)
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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