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Long-Term Development of Muscular Dystrophy Outcome Assessments

Recruitingn/aAges 6 Years - 50 YearsAllVirginia Commonwealth University
NCT05989620 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This is a 24-month, observational study of up to 1000 participants with Limb Girdle Muscular Dystrophy (LGMD), Myotonic Dystrophy Type 2 (DM2), and late onset Pompe disease (LOPD).

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. Age between 6-50 years at enrollment 2. Clinically affected (defined as weakness on bedside evaluation in a pattern consistent with proximal weakness) 3. Genetic confirmation of a LGMD, DM2, or LOPD 4. FVC above 30% of predicted Exclusion Criteria: 1. Any other illness that would interfere with the ability to undergo safe testing or would interfere with interpretation of the results in the opinion of the site investigator 2. Participation in a clinical trial receiving an investigational product
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What it tests

  • Not listed
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Where

1 site
Virginia Commonwealth University
Richmond, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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