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โ† Trials
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Friedreich Ataxia Global Clinical Consortium UNIFIED Natural History Study

Recruitingn/aAges any - anyAllFriedreich's Ataxia Research Alliance
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In plain words

What the trial is, and whether it could suit you

This project is a global, multicenter, prospective, longitudinal, observational natural history study that can be used to understand the disease progression and support the development of safe and effective drugs and biological products for Friedreich ataxia.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: 1. Both males and females of any age 2. Individuals with Friedreich ataxia (FA): Participants that meet genetically confirmed diagnosis of Friedreich ataxia 3. Written informed consent provided 1. Informed consent must be obtained for all participants 2. For underage participants, they and the parent/ legally authorized representative have to sign the informed consent form, child assent (if applicable) 3. Persons who are not legally competent require the informed consent of their legally authorized representative Exclusion Criteria: 4. Unable or unwilling to provide informed consent 5. Acute or ongoing medical or other conditions that would interfere with the conduct and assessments of the study 6. For any reason in the opinion of the investigator, participant would be unlikely or unable to comply with study protocol requirements.
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What it tests

  • Not listed
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Where

34 sites
UCLA Ataxia Center
Los Angeles, United States
University of Colorado
Denver, United States
University of Florida - Neurology
Gainesville, United States
USF Ataxia Research Center
Tampa, United States
Emory University Hospital - Neurology
Atlanta, United States
University of Iowa, Stead Family Children's Hospital
Iowa City, United States
Ohio State University - Neurology
Columbus, United States
Children's Hospital of Philadelphia
Philadelphia, United States

โ€ฆand 26 more on ClinicalTrials.gov.

๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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