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Multicenter HomeVENT: Home Values and Experiences Navigation Track

RecruitingNAAges 18 Years - anyAllJohns Hopkins University
NCT06102330 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This is a multicenter study to test a decision-making support process for families and clinicians facing decisions about chronic home ventilation for a child. The investigators hypothesize that the intervention will increase family preparedness for decision-making and will improve clinician-family shared-decision making. Half of families will be assigned to "usual care" arm and half to the "intervention" arm. Intervention families will view the study website with study staff and will answer questions related to website content. All families will be interviewed and surveyed at 1, 6 and 12 months after enrollment. Each family will designate 1-2 physician involved in the decision about home ventilation; each physician will be interviewed and surveyed at 1 month.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: 1. English- or Spanish-speaking 2. Males and females; Age 18 and over. 3. Parent of a child facing a decision about home ventilation within 30 days. A "parent" will be defined as any self-identified primary caregiver (parents, grandparents, etc). or Physician of a child whose parents are enrolled in the study; physician must be engaged in the home ventilation decision. 4. Provision of signed and dated informed consent form (parent) or completion of oral consent (physician) 5. Stated willingness to comply with all study procedures and availability for the duration of the study 6. Access to necessary resources if choose to participate via internet or telephone Exclusion Criteria: 1. Excluding children as they cannot be legal decision-makers 2. Non-English or Non-Spanish speaking parents, as the intervention website/ videos are only available in those two languages.
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What it tests

  • HomeVENT decision support tool
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Where

4 sites
Johns Hopkins All Childrens Hospital
Tampa, United States
Children's Hospital New Orleans
New Orleans, United States
Johns Hopkins University School of Medicine
Baltimore, United States
Seattle Childrens Hospital
Seattle, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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