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BELIDE: Better Living With Non-memory-led Dementia

RecruitingNAAges 18 Years - anyAllUniversity College, London
NCT06241287 on ClinicalTrials.gov โ†—
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In plain words

What the trial is, and whether it could suit you

Around 48 million people worldwide 1 live with dementia, of whom 3.9 million start with symptoms before the age of 65 (young-onset dementia). Most of the people presenting with young-onset dementia and some people with later onset dementia develop non-memory led dementias such as the atypical forms of Alzheimer ฬs disease (AD)or frontotemporal dementia (FTD). Despite the proven benefits of educational programmes and skill training for caregivers, families of people with non-memory led dementias encounter fewer opportunities to receive this type of support. This is a significant gap in care considering that many people with young-onset non-memory led dementia are in their 50s or early 60s, which carries additional challenges about employment, financial stability, and childcare responsibilities. Finding suitable information and resources is less likely due to the lower prevalence of these

Sign in to get the eligibility rules as simple questions to take to your doctor.

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๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: 1. Adults (18+) who self-identify as an unpaid carer (partners, children, friends, etc.) of someone with PPA, PCA or bvFTD who is not living in a full-time care facility. 2. The care recipient must have a confirmed diagnosis of dementia (through self-report of the carer, to reflect the 'real world' application of the intervention). 3. Able to give informed consent. 4. Good comprehension of written English. 5. Access to the internet. Exclusion Criteria: 1. Carers of people living with dementia in full-time care facility. 2. Carers of people with severe dementia in terms of large impact on activities of daily living. 3. Carers of individuals with any form of dementia other than PPA, PCA, or bvFTD. -
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What it tests

  • Better Living with Non-memory led Dementia programme
  • Waiting list
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Where

1 site
University College London
London, United Kingdom
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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