AI Cure is a research tool showing open data. Not medical advice. Discuss with your doctor. Terms

โ† Trials
๐Ÿงช

European Rare Blood Disorders Platform (ENROL)

Recruitingn/aAges any - 100 YearsAllHospital Universitari Vall d'Hebron Research Instโ€ฆ
๐Ÿ’ฌ

In plain words

What the trial is, and whether it could suit you

ENROL, the European Rare Blood Disorders Platform has been conceived in the core of ERN-EuroBloodNet as an umbrella for both new and already existing registries on Rare Hematological Diseases (RHDs). ENROL aims at avoiding fragmentation of data by promoting the standards for patient registries' interoperability released by the EU RD platform. ENROL's principle is to maximize public benefit from data on RHDs opened up through the platform with the only restriction needed to guarantee patient rights and confidentiality, in agreement with EU regulations for cross-border sharing of personal data. Accordingly, ENROL will map the EU-level demographics, survival rates, diagnosis methods, genetic information, main clinical manifestations, and treatments in order to obtain epidemiological figures and identify trial cohorts for basic and clinical research. To this aim, ENROL will connect and fac

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Inclusion Criteria: * Patients must meet all of the following criteria to be included in the ENROL Registry * Age from 0-100, both female and male * Diagnosed as RHDs according to ORPHANET classification * Able and willing to provide written informed consent (patient or legal representative for minors) if needed according to national legislation. Exclusion Criteria: * Patients diagnosed as traits or trait conditions for other recessive RHDs
๐Ÿ’Š

What it tests

  • Collection of clinical and laboratory data from EHR.
๐Ÿ“

Where

1 site
Marรญa del Mar
Barcelona, Spain
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
๐Ÿ›ก๏ธ

AI Cure shows public evidence (Open Targets, ClinicalTrials.gov, PubMed, openFDA, DepMap, AlphaFold) with its source, and AI summaries that cite it โ€” not medical advice and not a cure. Treatment decisions belong with your doctor. Research ideas are shared only with approved researchers and labs, who can test them. In an emergency call your local emergency number (112 in India and Europe, 911 in the US). AI Cure Terms of Use ยท Privacy