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Effects of a Supervised Rehabilitation Program on Disease Severity in Spastic Ataxias

RecruitingNAAges 16 Years - anyAllLaval University
NCT06261424 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Spastic ataxias are a group of diseases causing symptoms such as walking difficulties and balance impairments that lead to a high risk of falls. No pharmacological treatments exist to treat these diseases. Unfortunately, little effort is made to develop non-pharmacological treatments specific to spastic ataxias despite the detrimental impact of the disease on several aspects of an individual's life and the high cost of falls for society each year. The three objectives of this project are: 1) to determine the effect of a 12-week rehabilitation program on disease severity as compared with usual care for individuals with spastic ataxias; 2) to identify which factors can help (or not) the implementation of the program in the clinical settings ("reel world"); and 3) to explore the cost-benefits of IMPACT \[rehabIlitation prograM for sPAstiC aTaxias\]. The team has developed the program to spe

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📋 Eligibility rules (as published)
Inclusion Criteria: * have a confirmed genetic diagnosis of ARSACS or SPG7 * be able to maintain standing position and to transfert * be authorized by their treating neurologist * speak French or English * be able to give informed consent. Exclusion Criteria: * have active participation in a rehabilitation program (self-reported information) * have another condition causing physical limitations * be uncomfortable in a swimming pool * be pregnant.
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What it tests

  • IMPACT - rehabIlitation prograM for sPAstiC aTaxias
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Where

5 sites
CIUSSS de la Capitale-Nationale, Hôpital de Baie-Saint-Paul
Baie-Saint-Paul, Canada
CIUSSS de la Capitale-Nationale, Hôpital de La Malbaie
La Malbaie, Canada
CIUSSS du Centre-Sud-de-l'Île-de-Montréal, installation Centre de réadaptation Lucie-Bruneau
Montreal, Canada
CIUSSS de la Capitale-Nationale, installation IRDPQ
Québec, Canada
Clinique des maladies neuromusculaires du Centre intégré universitaire de santé et de services sociaux (CIUSSS) du Saguenay-Lac-Saint-Jean, installation Hôpital Jonquière
Saguenay, Canada
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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