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Pelvic Floor Muscle Training for Women with Myotonic Dystrophy

RecruitingNAAges 18 Years - anyFemaleUniversité de Sherbrooke
NCT06316778 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Myotonic dystrophy type 1 (DM1) is a neuromuscular disease characterized by multisystem manifestations. DM1 can affect the urinary system through the impact of the pelvic floor muscles (PFM). Urinary incontinence can occur in this situation and is often offset with compensatory measures without restoring the PFM function (e.g. sanitary pads). PFM training have already been shown to be effective in reducing or even eliminating urinary incontinence in the general population. However, no study has been the subject of this modality in people with DM1. Having recently shown that it is possible to gain strength with DM1, a strengthening protocol targeting PFM could prove effective in treating urinary incontinence. The objectives of this study are i) to assess the feasibility and acceptability of PFM training and ii) to investigate the effects of PFM training in women with DM1 with adult phenot

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📋 Eligibility rules (as published)
Inclusion Criteria: * confirmed medical diagnosis of myotonic dystrophy type 1 (DM1) with adult phenotype * symptoms of stress, urge or mixed urinary incontinence * able to give a free and informed consent Exclusion Criteria: * being pregnant, have given birth by vaginal delivery in the last year or plan to become pregnant in the next six months * present post-void residual urine ≥ 150 ml * have medical conditions that may have an impact on the symptoms of urinary incontinence and the response to treatments * present fecal incontinence (≥ 1/week) or significant prolapse (beyond the hymen) * have already received physiotherapy treatments in pelvic floor rehabilitation or surgery on the perineum * have a defibrillator, pacemaker or bladder stimulator
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What it tests

  • Pelvic floor muscle training
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Where

1 site
Clinique des maladies neuromusculaires
Jonquière, Canada
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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