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Investigating Dyadic Expectations About ARF Survivorship (IDEAS)

Recruitingn/aAges 18 Years - anyAllJohns Hopkins University
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In plain words

What the trial is, and whether it could suit you

The purpose of this observational study is to understand how adults who survive acute respiratory failure (ARF) and the people (usually family) who support ARF survivors after returning home think about the first 6 months of recovery. The study aims to find out if expectations about the recovery process after ARF are associated with mental health symptoms in both survivors and the survivor's care partners. Study participants will complete 3 surveys over 6 months. These surveys ask questions about participants' future expectations, feelings, and mood. Surveys can be completed online, over the phone, or on paper.

Sign in to get the eligibility rules as simple questions to take to your doctor.

๐Ÿ“‹ Eligibility rules (as published)
Patient Inclusion Criteria: * โ‰ฅ18 years old * Meets study definition of ARF: * The study defines ARF as meeting 1 of the following 3: 1. Mechanical ventilation via an endotracheal tube โ‰ฅ24 consecutive hours OR 2. Non-invasive ventilation (CPAP, BiPAP) โ‰ฅ24 consecutive hours that is not for obstructive sleep apnea or other stable use OR 3. High flow nasal cannula with fraction of inspired oxygen (FIO2)โ‰ฅ.5 and flow rate โ‰ฅ litres per minute (LPM) for โ‰ฅ24 consecutive hours. * Occasional rest periods of โ‰ค1 hour are not deducted from the calculation of consecutive hours. Patients who are intubated for mental status or airway obstruction are not eligible unless they have simultaneous ARF. * Survival to hospital discharge to home * Speaks or reads English or Spanish * Identifies an adult who is expected to act as a primary care partner for at least the next 6 months. Patient Exclusion Criteria: * Pre-existing cognitive impairment (IQ-CODE \>3.6) * Residing in a medical institution at hospital discharge * Receiving hospice care or life expectancy \<6 months * Homelessness or recent history of psychosis Care Partner Inclusion Criteria: * โ‰ฅ18 years old * Speaks or reads English or Spanish Care Partner Exclusion Criteria: * Pre-existing cognitive impairment (IQ-CODE \>3.6)
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What it tests

  • Dyadic expectations about the ARF survivor's perceived health 6 months after hospital discharge
  • Self-efficacy
  • Concordant expectations/shared appraisal of ARF survivor's health 6 months after hospital discharge
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Where

1 site
Johns Hopkins Hospital
Baltimore, United States
๐Ÿค Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible โ€” always decide together with your own doctor.
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