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The Genetics Navigator: Evaluating a Digital Platform for Genomics Health Services

RecruitingNAAges 18 Years - anyAllUnity Health Toronto
NCT06455384 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

Genetic testing (GT) (including targeted panels, exome and genome sequencing) is increasingly being used for patient care as it improves diagnosis and health outcomes. In spite of these benefits, genetic testing is a complex and costly health service. This results in unequal access, increased wait times and inconsistencies in care. The use of e-health tools to support genetic testing delivery can result in a better patient experience and reduced distress associated with waiting for results and empower patients to receive and act on medical results. We have previously developed and tested an interactive, adaptable and patient-centred digital decision support tool (Genetics ADvISER) to be used for genetic testing decision making, and have now developed the Genetics Navigator (GN), a patient-centred e-health navigation platform for end-to-end genetic service delivery. The objective of this

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📋 Eligibility rules (as published)
Inclusion: * Adult patients (18 years of age or older) who are referred to participating clinicians at Mount Sinai Hospital for clinical genetic testing. * Parents/legal guardians (18 years of age or older) of pediatric patients who are referred to participating clinicians at SickKids for clinical genetic testing. Exclusion: * Known not to be eligible for clinical genetic testing in Ontario * Requires urgent clinical genetic testing or prenatal genetic testing * Not fluent in English (speaking and reading)
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What it tests

  • Genetics Navigator
  • Standard Care with Genetics Professionals
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Where

3 sites
Mount Sinai Hospital
Toronto, Canada
The Hospital for Sick Children
Toronto, Canada
Sunnybrook Hospital
Toronto, Canada
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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