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TAKINGCARE - TAcKlING the Needs of Carers of People With Chronic respirAtoRy disEases

Recruitingn/aAges 18 Years - anyAllAveiro University
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In plain words

What the trial is, and whether it could suit you

This study aims to: i) develop an instrument that assesses the needs of informal carers of people with chronic respiratory diseases (CRD), along diseases' trajectory, and evaluate its measurement properties; ii) identify existing instruments that assess the needs of informal/family carers and their measurement properties, iii) characterize the needs of informal carers of people with CRD and iv) characterize the health literacy of informal carers of people with CRD. The first task will be a systematic review. For the second and third tasks, people with CRD, their informal carers and health professionals will be recruited via the pulmonology services from the hospitals:Unidade Local de Saúde de Gaia/Espinho, Unidade Local de Saúde da Região de Aveiro, and Unidade Local de Saúde de Entre o Douro e Vouga. On task 2, a mixed-methods study will be conducted to characterize the needs of inform

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📋 Eligibility rules (as published)
Inclusion Criteria: * People with chronic respiratory diseases (CRD): * 18 years of age or older; * Diagnosed with ILD, COPD, lung cancer, severe asthma or bronchiectasis; * Fluent in Portuguese; * Identify an informal/family carer; * Informal carers of people with CRD: * 18 years of age or older; * Fluent in Portuguese. * Health Professionals: * Fluent in Portuguese; * Contact with people with CRD in their clinical practice. Exclusion Criteria: * People with CRD: * Signs of cognitive impairment in the Six-item Cognitive Impairment Test (6CIT) for the interviews. * Informal carers of people with CRD: * Signs of cognitive impairment in the 6CIT.
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What it tests

  • Not listed
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Where

1 site
University of Aveiro
Aveiro, Portugal
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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