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← Trials
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The Co-Op @ HeartWorks

Recruitingn/aAges 0 Years - anyAllHeartWorks, Inc.
NCT06469918 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

This protocol is a research study involving human subjects diagnosed with Congenital Heart Defects/Disease (CHD). The Co-Op @ HeartWorks is a cooperative between the research platform at HeartWorks and members of the CHD community. Individuals choosing to participate will be referred to as 'members' of the co-op. This study aims to create a database of members medical journey data to inform future clinical innovation and design of clinical trials which address the needs of the members. The knowledge generated from this study will help advance the care of CHD patients through the deliberate action of The Co-Op @ HeartWorks members. Unlike a traditional disease registry, the members of The Co-Op @ HeartWorks will actively inform and contribute to the future studies affecting their health.

Sign in to get the eligibility rules as simple questions to take to your doctor.

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📋 Eligibility rules (as published)
Inclusion Criteria: * Adult with a congenital heart defects/disease * Caregiver of a minor with a congenital heart defect/disease * Authorized family member of a now deceased person with congenital heart defect/disease Exclusion Criteria: \- Not having a congenital heart defect/disease
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What it tests

  • Not listed
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Where

1 site
HeartWorks, Inc.
Rochester, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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