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Physical Activity Profile and Sedentary Behaviour in Adults With Cystic Fibrosis

Recruitingn/aAges 18 Years - 65 YearsAllHospices Civils de Lyon
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In plain words

What the trial is, and whether it could suit you

Cystic fibrosis is a multisystem genetic disease whose severity, linked to the nature of the mutation in the gene carried, is linked to respiratory impairment, which determines the vital prognosis. Considerable progress has been made in the management of this disease, amplified in recent years by the arrival of CFTR (cystic fibrosis transmembrane conductance regulator) modulator drugs, and in particular the triple treatment combination of elexacaftor-tezacaftor-ivacaftor (ETI). This modulator therapy improves clinical condition, particularly respiratory, and transforms quality of life and prognosis for some patients. Faced with this clinical improvement, practices and care paths are adapting. Professionals will have to cope with the emergence of new clinical conditions linked to the ageing of this at-risk population and the functional decline due to a sedentary lifestyle and age. The w

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📋 Eligibility rules (as published)
Inclusion Criteria: * Patients (male or female) of legal age, * Patients with cystic fibrosis (CF) regularly followed at Hôpital Lyon Sud's cystic fibrosis center, who volunteered to take part in the study. Exclusion Criteria: * People who, due to the presence of co-morbidities, do not have motor and cognitive skills compatible with independent walking or orthostatic physical activity. * People whose clinical situation contraindicates the practice of adapted physical activity * Pregnant women * People who do not have the intellectual or linguistic capacity to understand the questionnaires * Persons deprived of their liberty by judicial or administrative decision * Persons under psychiatric care * Persons admitted to a health or social establishment for purposes other than research * Adults under legal protection (guardianship, curatorship). * Persons not affiliated to a social security scheme or beneficiaries of a similar scheme
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What it tests

  • Characterize the physical activity and sedentary lifestyle profile of adults with cystic fibrosis
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Where

1 site
Hôpital Lyon Sud
Pierre-Bénite, France
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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