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CCHS Secure Health-hub Advancing Research Efforts (CCHS SHARE)

Recruitingn/aAges any - anyAllAnn & Robert H Lurie Children's Hospital of Chica…
NCT06554275 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The purpose of this study is to capture longitudinal natural history data in Congenital Central Hypoventilation Syndrome (CCHS). This will include capturing standardized clinical data from standard of care assessments at several CCHS referral centers. Funding source-FDA OOPD

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📋 Eligibility rules (as published)
Inclusion Criteria: Participants with a confirmed CCHS diagnosis (confirmed alveolar hypoventilation and PHOX2B mutation testing results), of all ages and genders, who are followed clinically. Exclusion Criteria: An unconfirmed diagnosis of CCHS or unconfirmed PHOX2B mutation or not followed clinically
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What it tests

  • Not listed
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Where

1 site
Ann & Robert H Lurie Children's Hospital of Chicago
Chicago, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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