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STELLA-FTD: Examination of a Behavior Change Intervention for FTD Family Care Partners

RecruitingNAAges 18 Years - 100 YearsAllOregon Health and Science University
NCT06613204 on ClinicalTrials.gov ↗
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In plain words

What the trial is, and whether it could suit you

The purpose of this nationwide study is to test STELLA-FTD (Support via Telehealth: Living and Learning with Advancing Alzheimer's Disease)-FTD, an intervention to specifically address the needs of family Care Partners of persons with frontotemporal degeneration (FTD). STELLA-FTD is a multicomponent videoconference-based intervention designed to facilitate effective use of community and peer resources to foster effective management of behavioral and psychological symptoms of dementia. The study is recruiting families from across the United States.

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📋 Eligibility rules (as published)
Inclusion Criteria: Family Care Partner * Adult caring for family member with FTD. * Provides 4 or more hours of care/week. Does not have to reside with. * Identifies at least 2 moderately upsetting behaviors in the person with FTD. * Speaks and understands English to be able to participate in intervention. * Owns a telephone (smartphone, cell phone or landline). * Has email and mailing address to receive computer, study materials and surveys. * Provides informed consent to participate in the research. * Lives in the US Inclusion Criteria: Person with FTD * Diagnosis of FTD * Family member of a Care Partner (this can be a relative, spouse, or close kin that is considered family). * Lives in US Exclusion Criteria: Person with FTD * No Frontotemporal Degeneration diagnosis. * Unable to leave Care Partner during STELLA-FTD sessions. * Enrolled in hospice. Exclusion Criteria: Family Care Partner * Unable to find activity for Care Recipient during STELLA-FTD sessions to allow Care Partner to work privately with Guide and other Care Partners. * Hearing and/or vision problems severe enough to prevent participation. * Refuses to be video-recorded during STELLA-FTD sessions. * Unwilling or unable to adequately follow study instructions and participate in study procedures.
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What it tests

  • STELLA-FTD Control
  • STELLA-FTD Test
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Where

1 site
Oregon Health & Science University
Portland, United States
🤝 Taking part is your choice, and you can leave at any time. Only the trial team can confirm you are eligible — always decide together with your own doctor.
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